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Hospice or home? : expectations of end-of-life care among white and Chinese older people in the UK.

机译:临终关怀还是家? :对英国白人和中国老年人临终护理的期望。

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摘要

This paper presents findings from two linked studies of white (n = 77) and Chinese (n = 92) older adults living in the UK, which sought their views about end-of-life care. We focus particularly on experiences and expectations in relation to the provision of end-of-life care at home and in hospices. White elders perceived hospices in idealised terms which resonate with a 'revivalist' discourse of the 'good death'. In marked comparison, for those Chinese elders who had heard of them, hospices were regarded as repositories of 'inauspicious' care in which opportunities for achieving an appropriate or good death were limited. They instead expressed preference for the medicalised environment of the hospital. Among both groups these different preferences for instututional death seemed to be related to shared concerns about the demands on the family that may flow from having to manage pain, suffering and the dying body within the domestic space. These concerns, which appeared to be based on largely practical considerations among the white elders, were expressed by Chinese elders as beliefs about 'contamination' of the domestic home (and, by implication, of the family) by the dying and dead body.
机译:本文介绍了两项有关英国居住的白人(n = 77)和中国人(n = 92)老年人的链接研究的结果,这些研究征求了他们对临终护理的看法。我们特别关注与在家中和临终关怀中提供临终关怀有关的经验和期望。白人长老以理想化的方式感知了招待所,并与“善死”的“复兴主义者”论述产生共鸣。与之形成鲜明对比的是,对于那些听说过这些中国老人的人,收容所被视为“不吉利”照料的仓库,在这里,实现适当死亡或良好死亡的机会受到限制。相反,他们对医院的医疗环境表示偏爱。在这两个群体中,对本能死亡的不同偏好似乎与对家庭需求的共同担忧有关,这些需求可能源于必须处理家庭空间中的痛苦,痛苦和垂死的身体。这些担忧似乎主要是基于白人长者的实际考虑,而中国的长者则表示,他们相信死者和死者的尸体会“污染”家庭房屋(并暗指家庭)。

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